CoRDS recently sat down with Sophia Zilber from the Cure Mito Foundation and Allison Peck from Cure VCP Inc. Sophia and Allison are both very strong advocates for their foundation and have done an amazing job recruiting to their registries. They also share some pain points they have faced when recruiting to the registry. Tune in to learn how they have built their registries along with different strategies to make it successful.
Understanding SURF1 Leigh Syndrome