We have a new published paper! In 2022, we held a first Leigh syndrome symposium, which brought together patients, industry, academic researchers, and clinicians globally.
Our paper, “Teamwork makes the dream work: functional collaborations between families, scientists, and healthcare providers to drive progress in the treatment of Leigh Syndrome” can be found here: Teamwork makes the dream work: functional collaborations between families, scientists, and healthcare providers to drive progress in the treatment of Leigh Syndrome | Orphanet Journal of Rare Diseases (springer.com)
