We have joined together with Hope for PDCD Foundation to have both of our registries on the Sanford Health CoRDS platform, ease the burden for 25-35% of patients who have both Leigh syndrome and PDCD and get better quality data by aligning on our registry platform and surveys! Please learn more in the press release: https://www.eurekalert.org/news-releases/1038088
Understanding SURF1 Leigh Syndrome