The CRID is a universal Clinical Research ID that connects records to patients so data can be used for research.
Clinical Research ID
The Clinical Research ID (CRID) is a revolutionary service that empowers patients to take control of their own research data. CRID is a service that enables patients involved in clinical research the opportunity to create their own Unique Universal ID. You create your CRID (for yourself and/or your child) and you decide which researchers to share it with. By sharing your CRID, researchers can then reuse, merge and share your research data (without using your PII/PHI).
If you wish to generate a CRID for you or your child, you may do so by visiting https://TheCRID.org.
CRID Principles
- CRID is always free for the parent/patient
- CRID is always optional for research studies
- CRID data is private and will never be sold or shared with any third parties
Frequently asked questions
What is CRID?
CRID, or Clinical Research Identifier, is a unique identifier for patients participating in clinical research studies. This identifier is generated by the patient or their parent and serves as a secure and consistent way to identify a patient’s information across multiple research studies.
Is CRID Secure?
Yes, CRID takes security seriously. All CRID data is stored on secure Amazon AWS servers and is encrypted both in the database and while in transit. Additionally, we do not use Google Analytics.
What does a CRID look like?
A CRID identifier is an 8-character random string of letters and numbers that is unique to each patient.
How to use the CRID?
Patients can share their CRID identifier with investigators on research studies they are or have been enrolled in.
Why use CRID?
Many patients are unaware that their data is not shared with other researchers working on the same or similar diseases. They may also experience “survey fatigue” from being asked to complete similar forms for multiple studies. CRID allows for the sharing, reuse, and merging of data across studies by connecting deidentified patient information.
How do I create my CRID identifier?
To create a CRID identifier, visit the website https://TheCRID.org. If you do not already have an account, click on [Create an Account]. If you have an account, click on [Login]. To create a new CRID identifier for yourself or a family member, click on the [Add a New Person] button. There is also a short training video available on the website that demonstrates this process.
CRID is a free service and has been reviewed and approved by the Veritas Charitable Institutional Review Board (Registration Number: IRB00012821, Parent Organization Number: IORG0010811), Protocol ID #1230301. If you have any questions or concerns about CRID, or if you need assistance, you can send an email to info@thecrid.org.
